![The IBC Network Foundation](/img/default-banner.jpg)
- 122
- 85 015
The IBC Network Foundation
United States
Приєднався 6 тра 2015
Inflammatory Breast Cancer (IBC) is a rare and highly fatal form of breast cancer that is not typically discovered by mammogram and often occurs prior to standard breast cancer screening age recommendations.
Don't know what IBC is? Don't feel bad, most people are very uneducated about IBC. Our goal is to bring this "orphaned disease" into the limelight and encourage education and funding of research for this highly fatal 200 year old form of breast cancer. Take a few minutes and learn! We need to be educated on this cancer if we are going to save lives.
Inflammatory breast cancer symptoms may include:
• Breast swelling, which one breast is suddenly larger than the other • "bug bite" that doesn't heal • Breast that feels warm to touch & may look infected• Itching or shooting pain• A dimpling of the breast skin that looks like an orange peel (peau d’orange)• Thickening of the skin • Flattened or discolored nipple • Swelling in underarm • Might feel lump, however lumps are not common.
Don't know what IBC is? Don't feel bad, most people are very uneducated about IBC. Our goal is to bring this "orphaned disease" into the limelight and encourage education and funding of research for this highly fatal 200 year old form of breast cancer. Take a few minutes and learn! We need to be educated on this cancer if we are going to save lives.
Inflammatory breast cancer symptoms may include:
• Breast swelling, which one breast is suddenly larger than the other • "bug bite" that doesn't heal • Breast that feels warm to touch & may look infected• Itching or shooting pain• A dimpling of the breast skin that looks like an orange peel (peau d’orange)• Thickening of the skin • Flattened or discolored nipple • Swelling in underarm • Might feel lump, however lumps are not common.
Expanders and IBC
Inflammatory breast cancer is not like most other breast cancers. When getting a non skin sparing mastectomy, be sure you ask your doctor if expanders are the standard of care.
Переглядів: 11
Відео
IBC Learning Academy
Переглядів 10Місяць тому
If you are interested in becoming an advocate for inflammatory breast cancer, you should consider taking the IBC Learning Academy online course at ibclearningacademy.org.
Talk IBC Podcast interview with Dr. Daniel Stover.
Переглядів 772 місяці тому
Terry Arnold interviews Dr. Daniel Stover of the IBC Clinic at The James, Ohio State University. They discuss new research and the processes for inflammatory breast cancer.
Standard of care for a rare disease.
Переглядів 332 місяці тому
When you are diagnosed with a rare disease, please take the time to learn about the national standard of care.
Stop wondering if you are next.
Переглядів 242 місяці тому
There are a lot of IBC sisters that are well. We have to find a way to stop wondering if we are next after a sister has passed.
Help make the IBC Network Sustainable
Переглядів 142 місяці тому
Helping the IBC Network Foundation become sustainable will help researchers find a way to stop inflammatory breast cancer by being able to rely on continual project funding.
Yellow Rose Boot Scoot
Переглядів 283 місяці тому
KTEX 106.1 Radio interview with Terry Arnold of the IBC Network Foundation. Join us at the Yellow Rose Boot Scoot. Tickets available at YellowRoseBootScoot.org.
Spring Update
Переглядів 1233 місяці тому
Learn about what's coming up at the IBC Network Foundation. We have lots of meet ups planned and don't miss the Yellow Rose Boot Scoot!
Someone dies every day.
Переглядів 545 місяців тому
Every day someone dies of inflammatory breast cancer, even though it is considered rare.
Kicking off 2024
Переглядів 865 місяців тому
We can feel things beginning to change in the IBC world. We are getting noticed. Let's keep it going throughout 2024! Thank you for all you have done to make this happen.
Let's talk about toxic positivity.
Переглядів 316 місяців тому
Toxic positivity is the belief that no matter how dire or difficult a situation is, people should maintain a positive mindset. While there are benefits to being optimistic and engaging in positive thinking, toxic positivity rejects all difficult emotions in favor of a cheerful and often falsely-positive façade. (Source verywellmind.com)
Exercise and LE
Переглядів 486 місяців тому
When the doctors says to wear your lymphedema sleeve, listen.
SABCS23 Advocate Interviews
Переглядів 86 місяців тому
We asked a few advocates at the San Antonio Breast Cancer Symposium what they thought about the event.
Inflammatory breast cancer - we can make changes
Переглядів 1137 місяців тому
With donations at an all time low, we need you more than ever. Donate to the IBC Network Foundation to support inflammatory breast cancer research. We are advocating and creating education that helps women get diagnosed quicker. We are on the only foundation funding research and late stage breast cancer. Make us your charity of choice. TheIBCNetwork.org/donate
Aren't we all aware of breast cancer?
Переглядів 498 місяців тому
Let's start doing something more than just talking about breast cancer. Let's do something about it.
Seeking justice for inflammatory breast cancer patients.
Переглядів 1718 місяців тому
Seeking justice for inflammatory breast cancer patients.
The Standard of Care for Inflammatory Breast Cancer
Переглядів 63910 місяців тому
The Standard of Care for Inflammatory Breast Cancer
It's time to mobilize and start talking about inflammatory breast cancer.
Переглядів 12210 місяців тому
It's time to mobilize and start talking about inflammatory breast cancer.
Personal Invitation to the Ultimate IBC Meet Up
Переглядів 6011 місяців тому
Personal Invitation to the Ultimate IBC Meet Up
Getting expanders with inflammatory breast cancer.
Переглядів 174Рік тому
Getting expanders with inflammatory breast cancer.
Inflammatory breast cancer standard of care.
Переглядів 190Рік тому
Inflammatory breast cancer standard of care.
Kevin Williams PhD Transactional Science 2023
Переглядів 26Рік тому
Kevin Williams PhD Transactional Science 2023
Just downloaded. I got diagnosed 2 days ago 😔 and I’m so ready to fight for my life 🥊
We hope everyone downloads the app. A very useful tool!
Please download the app and tell us what you think of it.The links are in the video description.